TeamHD

at 151 Frederick Street, Suite 400, Kitchener , N2H 2M2 Canada

Join TeamHD by organizing, participating or donating to an event that supports those suffering from Huntington disease!

Address and contacts of TeamHD

place map
TeamHD
151 Frederick Street, Suite 400
Kitchener , ON N2H 2M2
Canada
Email
Contact Phone
P: 519-749-7063
Website

Description

The HD community across Canada is a group of passionate and generous people who aspire to a world free from Huntington disease. This group of people support one another and know that there are few people in the world that fully understand what everyday life is like for a person or family affected by this disease. This makes the HD community unique, this makes them a family. Thanks to this amazing community, the Huntington Society of Canada receives a large portion of their funds from Chapter and volunteer fundraising efforts to put towards research and family services for affected individuals and families. These fundraising events are integral in allowing HSC to support the HD community. The volunteers who organize events, as well as the participants and sponsors who get pledges and raise money for the cause are a special team in the community; making a difference by not only raising money, but awareness for the disease across the country. We like to refer to this team as teamHD. TeamHD began as a national running team, the idea being that people could run in marathons and other such events across the country, being united in their fundraising efforts for Huntington disease. This spirit has spread through the community, and even those who aren’t runners want to be a part of this team. Whether you volunteer, organize, run, walk, bike, or even go-kart, you are a part of our team. We are all working towards the same goal: ending Huntington disease. The more people we have on our team, the closer we get to this goal. We invite you to participate in this dedicated community any way you can and recruit friends and family to join as well. Let us know what you’re good at! Are you a musician, photographer, writer? TeamHD can use all of your talents to benefit those affected by HD. Our teamHD Facebook page is full of opportunities to get involved and be a part of the team! You can keep up with the community and share your photos and experiences by posting on Facebook or using our hashtag #teamHDcan on Twitter and Instagram. Help spread the word and raise money by joining teamHD! Your help is needed to support those suffering from Huntington disease. All proceeds raised through TeamHD will go to support Family Services and Research in the fight against Huntington disease. For more information about events or how to get involved, email us at events@huntingtonsociety.ca. Welcome to the team.

General Info

The Huntington Society of Canada is a national network of volunteers and professionals, united in the fight against HD since 1973, who aspire to a world free from Huntington disease. The Society maximizes the quality of life of people living with HD by delivering services, enabling others to understand the disease and furthering research to slow and to prevent Huntington disease. Please see www.huntingtonsociety.ca for more information. What is Huntington disease? Huntington disease (HD) is a debilitating brain disorder that is fatal and incurable. About one in every 6,000 Canadians has HD and approximately 5 in every 10,000 are at risk of developing the disease. Many more are touched by HD whether as a caregiver, a family member, or a friend. Huntington disease is devastating for both the body and the mind. The symptoms, which may include uncontrollable jerking movements and relentless cognitive and emotional impairment, usually appear between the ages of 30 and 45, and gradually worsen over the 10-25 year course of the disease. Eventually they lead to incapacitation and death. Where does the money go? Family Services HSC is committed to supporting people living with Huntington disease. Each year, over 2,500 individuals and families are supported through our Family Services program in countless communities from coast-to-coast. We employ trained professionals wo are "HD experts". They work a flexible schedule and a variety of hours during the week to provide services to communities all across Canada, including; •information and confidential consultation to families about the nature and course of HD, techniques of care, and research progress •education to community agency staff and health care professionals reagarding HD, care strategies, and recent research developments •short term, confidential counseling to individuals and families about future planning, genetic testing, and ongoing changes they will face •mutual support groups for individuals with HD, those at risk, caregivers, or couples •referrals to community services and resources, financial assistance programs, and long-term care facilities Research HSC is dedicated to furthering research to slow and prevent HD. As well as attracting Canadian scientists to research, HSC is involved in all facets of the research spectrum. We work with partners through various research programs to foster basic science about the underlying pathology of HD, and we support clinical trials to test new treatments. Canadian researchers funded by HSC continue to play key roles in the international drug discovery process. The Society's Research Council, comprised of leading scientists, reviews grant applications and provides scientific advice.

Company Rating

261 FB users likes TeamHD, set it to 38 position in Likes Rating for Kitchener, Ontario in Non-profit organization category

Summary

TeamHD is Kitchener based place and this enity listed in Event Planning category. Located at 151 Frederick Street, Suite 400 ON N2H 2M2. Contact phone number of TeamHD: 519-749-7063

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