ALS Worldwide

at 5808 Dawley Drive, Fitchburg , 53711 United States

1. Charity Organization
2. Non-Profit Organization

We strive to help people live better and longer with ALS by providing FREE assistance to anyone affected by the disease in more than 120 countries. In 2002, Ben Byer was diagnosed with ALS/MND at the age of 31. From that moment on, Stephen and Barbara Byer devoted their lives to finding an effective way to stop, slow or reverse Ben’s disease. Unwilling to accept that nothing could be done for their son and dismayed by the lack of resources available, Stephen and Barbara sought out the most promising research, drug trials, and treatments for symptom relief for Ben. For six years, they consulted with neuroscientists, neurologists, medical specialists and ALS/MND patients and their loved ones from around the world. In addition to sharing each new discovery with Ben, Stephen and Barbara passed on what they learned to others struggling with the devastating effects of the disease via Internet chat rooms, email, Skype and phone. Despite their tireless efforts, Ben passed away from the disease in 2008 at the age of 37. Shortly after his death, Stephen and Barbara founded ALS Worldwide to honor their son’s memory, keep his fight alive and ensure that no one has to face ALS/MND alone. Today, each member of ALS Worldwide draws upon their personal and firsthand knowledge of the disease to provide guidance, compassion and hope to ALS/MND patients and their families. Visit www.alsworldwide.org to learn more.

Description

WHAT IS ALS? The name amyotrophic lateral sclerosis is Greek in origin. “A” means "no" or "negative," “myo” translates to “muscle”, and “trophic” refers to “nourishment”. So, amyotrophic means “no muscle nourishment”. "Lateral" refers to the places in a person's spinal cord where portions of nerve cells that signal and control the muscles are located. As this area degenerates it leads to scarring or hardening ("sclerosis") in the region. In the United States and many other countries, Amyotrophic Lateral Sclerosis (ALS) is commonly known as Lou Gehrig’s disease, named after the legendary Yankees baseball player who died from ALS in 1941. In the United Kingdom and other parts of the world, ALS is often called Motor Neurone Disease (MND). In many Spanish speaking countries it is called Esclerosis Lateral Amiotrófica (ELA). This disease weakens and kills nerve cells that control voluntary muscle movement. Individuals are robbed of their ability to move, speak, eat and breathe, but it often leaves the mind intact. Death can occur within 2-5 years of diagnosis, but some individuals have survived for 10 or more years. Some symptoms can be managed and certain treatments can help extend life. However, there is currently no known cure or fully effective treatment for the underlying causes of ALS. WHO SUFFERS FROM THIS DISEASE? ALS is not contagious and doesn't discriminate. This disease can strike anyone, regardless of age, gender, race, ethnicity, or socioeconomic status. Every 90 minutes ALS claims another life. Every time someone dies, another person is diagnosed with ALS. HOW YOU CAN GET FREE SUPPORT Visit alsworldwide.org/get-help to learn more and to find out how to receive FREE guidance and support via videoconference, email, phone and in-person visits. HOW YOU CAN HELP OTHERS ALS is not an incurable disease, it's just severely underfunded. Make a tax-deductible contribution at alsworldwide.org/donate. Like our Facebook page at www.facebook.com/ALSWorldwide and like and share our posts to spread awareness about ALS/MND/ELA and give help and hope to people living with ALS around the world. ALS Worldwide provides FREE guidance, care and support to people living with ALS and their loved ones via videoconference, email, social media, phone, and in-person visits in the USA and more than 120 other countries. We seek to help people live better and longer with ALS. Until there's a cure, there's ALS Worldwide. Funded solely through the generosity of our supporters, ALS Worldwide has a proven record of using resources in the most cost-effective ways possible. Visit www.alsworldwide.org to learn more.

General Info

ALS Worldwide is the only nonprofit global health organization that provides FREE support to people living with ALS/MND in the USA and more than 120 other countries around the globe. We seek to help people live better and longer with ALS. Until there's a cure, there's ALS Worldwide. Learn more at alsworldwide.org. Funded solely through the generosity of our supporters, ALS Worldwide has a proven record of using resources in the most cost-effective ways possible. Visit www.alsworldwide.org to learn more.

Company Rating

40 Facebook users were in ALS Worldwide. It's a 3 position in Popularity Rating for companies in Charity Organization category in Madison, Wisconsin

777300 FB users likes ALS Worldwide, set it to 1 position in Likes Rating for Madison, Wisconsin in Charity Organization category

Summary

ALS Worldwide is Madison based place and this enity listed in Non-Profit Organization category. Located at 5808 Dawley Drive WI 53711. Contact phone number of ALS Worldwide: (608) 663-0920