Cure SMA - OKI Chapter

at , Cincinnati, 45254 United States

Cure SMA is dedicated to the treatment and cure of spinal muscular atrophy (SMA). Visit www.cureSMA.org to learn more


Cure SMA - OKI Chapter

Cincinnati , OH 45254
United States
Contact Phone
P: (513) 753-8222
Website

Description

We are a collaborative organization where families, friends and researchers are all working together towards the same goal. Visit www.cureSMA.org to learn more.

General Info

http://www.youtube.com/watch?v=aYzzJnBQuDg&feature=youtu.be

Company Rating

15 Facebook users were in Cure SMA - OKI Chapter. It's a 20 position in Popularity Rating for companies in Non-profit organization category in Cincinnati, Ohio

701 FB users likes Cure SMA - OKI Chapter, set it to 19 position in Likes Rating for Cincinnati, Ohio in Non-profit organization category

What a great day we had Saturday at the Cincinnati Walk and Roll! A huge thank you to all that came out to join in the fun, all the sponsors and donors and a special shout out to the Cintas Center staff, the Cure SMA National Office and the wonderful volunteers that helped make the day perfect. Check out the photos posted yesterday and feel free to tag yourselves and share any photos to your page. Let's keep spreading the CURE SMA message and work towards the cure. Update to money raised will be posted soon, fundraising pages remain open and don't forget any matching donations your employers may offer. THANKS!

Published on 2015-06-15 02:32:51 GMT

August 29th is CURE SMA Walk N Roll Marion,IN events.curesma.org/2015MarionWalk

Published on 2015-06-14 17:53:02 GMT

August 1st Cure SMA Golf in Memory of Aubrey Grace Lyden, in Lake Milton, OH. events.curesma.org/2015AGLGolf

Published on 2015-06-14 17:50:24 GMT

Thank you everyone who came out to the Cincinnati Walk-N-Roll! Our current total is..........$70,872! We appreciate everyone's fundraising efforts! It was wonderful seeing so many people at today's event! Thank you to our walk committees, the committee from Cintas Center, Jen Dalton, and all of our volunteers, sponsors and walkers!

Published on 2015-06-13 21:52:01 GMT

We look forward to seeing everyone in the morning! We would love to see your pictures as well! When you post pictures please use #CURESMA ! Enjoy the walk!

Published on 2015-06-13 03:56:01 GMT

Hey families! Who is coming to the CURE SMA conference in Kansas City? We can't wait to see everyone! Did you receive your invite to attend a meet and greet for Friday June 19th at the conference? We set up this time so you can meet people in your area. Take a minute to RSVP! Hope to see you all.

Published on 2015-06-03 23:02:39 GMT

If you have a child who was diagnosed with SMA since our last walk, April 2014 and you would like their picture to be along our walk pathway, please e-mail a picture and a permission to use the picture to Lockwood.betha@gmail.com by Thursday or Friday at the latest. Thank you!

Published on 2015-06-03 17:35:52 GMT

We are still in need of face painters for the walk. Please let me know if you are interested. The walk is June 13th.

Published on 2015-06-01 13:15:25 GMT

Only 2 weeks until the registration deadline for the OKI Walk-N-Roll! Save time on walk day by pre-registering online at http://events.curesma.org/2015OKIWalk ! All you'll have to do is pick up your shirts at the pre-registration table and you'll be off to have fun in a matter of minutes!

Published on 2015-05-29 18:23:01 GMT

We are in need of face painters for the walk. Please let me know if you are interested. The walk is June 13th.

Published on 2015-05-22 21:06:57 GMT

HOME BOUND STUDENTS IN KENTUCKY: An advocate for homebound students is trying to change the laws in Kentucky because they only allow homebound students a few visits per month from a teacher. She is getting together a panel to go before the Kentucky Congress and speak about their experiences with their homebound students. She has a teacher and a doctor that are willing to testify, but she is looking for mothers or fathers of homebound students to come and share their stories about how the homebound teaching they've received has not been enough. To get more information if you are interested in helping please contact Kristen at akdeluca03@gmail.com. Thank you!

Published on 2015-11-12 02:20:40 GMT

Join us for our painting fundraiser to send kids to camp: "Camp for Courageous Kids offers a weekend getaway for families with children battling a serious disease. Every year, Spinal Muscular Atrophy weekend at CCK is an absolute blast for our kids and others with this same disease. It's an all- expense paid trip that covers lodging, food and all the entertainment one could desire. Our world is full of non-accessible activities and entertainment, but at CCK, our kids and others were kept in mind when the camp was built. From the accessible indoor pool, to horse back riding, archery, fishing and even an accessible bowling lane, this camp gives our kids these opportunities that they normally don't get in life. They can forget about breathing treatments and just be a kid for a few days" $35.00 per person Friday October 30, 2015 7:00 p.m. Sharonville Cultural Arts Center 11165 Reading Rd. Sharonville, OH 45421 To Register Credit Card —Register online at www.abrushforfunz.com or Mail checks made out to Rusty Harden Art Studio to Cure SMA, PO BOX 541012, Cincinnati, OH 45254 The Center for Courageous Kids

Published on 2015-10-22 13:33:30 GMT

Join us for our painting fundraiser to send kids to camp: "Camp for Courageous Kids offers a weekend getaway for families with children battling a serious disease. Every year, Spinal Muscular Atrophy weekend at CCK is an absolute blast for our kids and others with this same disease. It's an all- expense paid trip that covers lodging, food and all the entertainment one could desire. Our world is full of non-accessible activities and entertainment, but at CCK, our kids and others were kept in mind when the camp was built. From the accessible indoor pool, to horse back riding, archery, fishing and even an accessible bowling lane, this camp gives our kids these opportunities that they normally don't get in life. They can forget about breathing treatments and just be a kid for a few days" $35.00 per person Friday October 30, 2015 7:00 p.m. Sharonville Cultural Arts Center 11165 Reading Rd. Sharonville, OH 45421 To Register Credit Card —Register online at www.abrushforfunz.com or Mail checks made out to Rusty Harden Art Studio to Cure SMA, PO BOX 541012, Cincinnati, OH 45254 The Center for Courageous Kids

Published on 2015-10-22 13:33:30 GMT

It's that time of year again and we would love to see your Halloween Costume Photos. You can private message them to us on this page or e-mail them to me at lockwood.betha@gmail.com and we will start posting pictures. Can't wait to see all of the creative costumes!

Published on 2015-10-18 15:20:48 GMT

Save the Date: Halloween costume skating party: Sunday, October 25th, from 5 pm- 7 pm at Skate Town USA. We will have the entire skating rink to ourselves for the entire party. Don't forget your costumes! Please remind any family members that everyone should be healthy when attending this event. Thank you!