hopeforholly.co.uk

Hope For Holly is a Registered Charity (Number 1154158)

Address and contacts of hopeforholly.co.uk

place map
hopeforholly.co.uk

Middlesbrough
United Kingdom
Email
Contact Phone
P: 07714 895301
Website
http://www.hopeforholly.co.uk

Description

Holly was diagnosed a week before her 4th birthday, she is normally a happy little girl with enormous amounts of energy. Holly lives with her parents and baby sister in Marton, Middlesbrough. Holly had been poorly before and during our holiday to Portugal, she had been sick, was pale and had no energy. Her skin was bruising easily and she complained of tummy ache. On our return we went out to lunch with family and following the tiny amount of she ate, Holly cried complaining of tummy ache and fell asleep in the car on the way home. We were extremely worried so used the NHS call back service when we got home. We were sent to a health centre and the doctor there felt Holly’s tummy and noticed that she was pale, he sent us to James Cook University Hospital Paediatrics day assessment unit. They decided to carry out a blood test, Holly was very scared but got through it without making a sound. A short while later the doctor came back and give us the news no parent ever wants to hear, Holly almost definitely had Leukaemia and would be transferred to Newcastle’s Royal Victoria Infirmary (RVI) first thing the next morning. The worst day in the history of our lives, it instantly felt like someone had ripped out our insides, we wished it were us. Holly was very poorly in the first 4 weeks of treatment complaining of stomach pains on a regular basis, she had many trips back to the RVI but they couldn’t find out why her tummy was hurting. We knew something was not right! On Friday 29th June the doctors decided to carry out a scan of her stomach which showed lots of free air suggesting a perforated bowel, we knew this could make her very very poorly and the doctors need to operate straight away, doctors and nurses were rushing around trying to get fluids into Holly, she was taken to theatre at 10:30pm. This was the hardest day of all as not only was she suffering from Leukaemia but a possible perforated bowel. It was discovered once under anaesthetic that her appendix had burst. After a 5 hour operation Holly spent the night in Intensive Care (ICU) During her treatment Holly will be a very poorly young girl as side effects of the chemotherapy can and regulary do include: nausea/vomiting, diarrhoea, constipation, alopecia, weight loss and weight gain, extreme fatigue, lethargy, dizziness and mucositis (extremely painful mouth and throat ulcers) Further more Holly will be highly susceptible to infection, which could prove to be life threatening, as her immune system will be suppressed due to the chemotherapy she will receive, any rise or fall in temperature will result in urgent medical advice or hospital admission where she could require 3-10 days of treatment with intravenous antibiotics. Holly will undergo treatment for Leukaemia for the next 2 years and even after this will require regular monitoring for the rest of her life. The charity Hope for Holly set up in Holly's name with the following key aims; 1) Provide family bags with essential items for hospital stays. 2) Sponsor a room at Crawford House, Newcastle RVI that provides families with living facilities whilst their child is in hospital. 3) July 2014 we were very proud to open the doors of the ‘Hollyday’ caravan which is situated at the 5*resort of Ribby Hall, Blackpool. We have already received fantastic feedback from the families who have visited, who are extremely grateful for a free holiday to unwind, relax and enjoy family time during or following the stressful treatment phases. You can follow the stories of these children at www.hopeforhollyblog.wordpress.com Supporting children with cancer and their families... Bringing a smile to faces that have been through the unimaginable... Providing opportunities for families to share precious time creating lasting memories.

Company Rating

8 Facebook users were in hopeforholly.co.uk. It's a 2 position in Popularity Rating for companies in Charity Organization category in Middlesbrough

8189 FB users likes hopeforholly.co.uk, set it to 1 position in Likes Rating for Middlesbrough in Charity Organization category

Summary

hopeforholly.co.uk is Middlesbrough based place and this enity listed in Charity Organization category. Contact phone number of hopeforholly.co.uk: 07714 895301

Charity Organization category, Middlesbrough

hopeforholly.co.uk
Middlesbrough null United Kingdom

Hope For Holly is a Registered Charity (Number 1154158)

MAIN - Taking Autism Personally
16 High Force Road, Riverside Park Middlesbrough TS2 1RH United Kingdom

At MAIN we support people, not ‘cases’ or ‘numbers’. We exist to offer advice & services for families living with Autism to raise their aspirations, empower themselves, and have the confidence to be proud to ‘wear their t-shirt with a smile’. At MAIN we support people, not ‘cases’ or ‘numbers’. We exist to offer advice and services tailored to each individual and family living with Autism to raise their aspirations, empower themselves, and have the confidence to be proud to ‘wear their t-shirt with a smile’. Our ambition is to change society’s perceptions of Autism, and increase understanding of the challenges and opportunities living with Autism brings.