Linked With Liam

at , Houston, 77284 United States

Linked with Liam is Federal 501c3 Non Profit Co dedicated to improving the lives of children with cancer and supporting their families through our programs


Linked With Liam

Houston , TX 77284
United States
Contact Phone
P: (832) 270-1511
Website
http://www.linkedwithliam.org

Description

Liam Webb was a normal, happy 3 year old boy. He loved playing with his sisters, eating pizza and jumping away in bounce houses. He was in perfect health and I had no reason to think that anything might be wrong with my child. During Spring break of 2013, my mom noticed that Liam was leaning his head to the side. I brushed it off and continued on with life. About a week later, my mother in law flew in to town and noticed that his head was tilted as well. I decided to take him to his pediatrician to have it looked at. The doctor believed it was an injury, and sent us home with orders to give him ibuprofen for the swelling and to come back in 2 weeks if his neck was not better. Two weeks passed and Liam's neck was still tilted. I posted pictures of him online to ask family and friends if this had ever happened to their kids. I researched online and found explanations that ranged from torticollis to brain tumors. I actually laughed at the brain tumor explanation. "No" I laughed. "It is definitely not that serious!" I decided to call the doctor back to see what he suggested. He referred Liam to see a physical therapist and I called them right away. They were unable to see Liam until June which was still 3 months away! It was then that mother instinct kicked in, and I decided to take him to the emergency room. After a long wait, the doctor finally saw us and suggested an MRI. I thought that was a bit much because they would have to put him under anesthesia. Instead, we opted for the much faster CT scan. I knew nothing would show up. Nothing ever does, right? After another long wait, the doctor returned to our room and asked us to please turn down the Tinkerbelle movie that Liam was watching. It was then that I knew something was very wrong. "Unfortunately, there is a large mass located in your son’s brain." That was all I heard. My head started spinning and my world was shattered. On April 11, 2013, Liam was diagnosed with a brain tumor. It would later be diagnosed as a very rare and aggressive tumor called AT/RT. Despite the diagnosis, Liam was doing so well! He made it through 3 brain surgeries, meningitis and a horrible staph infection that hospitalized him for 4 weeks, 6 weeks of intensive radiation to his brain and 3 bone marrow transplants! After his third and final round of chemotherapy, Liam became ill with RSV which turned into pneumonia. After being hospitalized for a week, he finally began to improve! His fever was gone, he was talking again and was about to be moved from the ICU floor. Unfortunately, and without any warning, Liam passed away on November 23. It was not the cancer that killed him, but the treatments that lowered his immune system so that it was unable to fight infection. We all mourn differently in my family, but we are all still very much mourning. My daughter cries for him every night. My husband remembers Liam saying how much he wanted to play soccer, and that is no longer a possibility. I ache to feel his hugs and cuddles. The cards and letters have now stopped coming. The calls as well. It's to be expected. The world can't mourn with us forever. We need to find a way to continue on without our only son. I'm not in a deep hole. I don't need medication. I just miss him! I will always long for my comedian. My entertainer. My dancer. My singer. My giggler. My snuggle bug. My jumping bean. My helper. My joy. My life. My hero. My son. Linked With Liam is a Federal 501c3 Non Profit Corporation - Registration #46-4500627

Company Rating

3 Facebook users were in Linked With Liam. It's a 50 position in Popularity Rating for companies in Non-profit organization category in Houston, Texas

3426 FB users likes Linked With Liam, set it to 21 position in Likes Rating for Houston, Texas in Non-profit organization category

We love to hear from the recipients of our warrior packs and to hear how they are doing! If you have recently received a Linked with Liam warrior pack, please share a photo with us and let us know how we can pray for you!

Published on 2015-10-19 17:05:11 GMT

I want to thank everyone who helped make our cheers to Liam event a huge success! From the bottom of our hearts, thank you!

Published on 2015-10-13 22:25:16 GMT

We are now accepting toy and gift card donations for the holiday season! These gifts will be distributed to children being treated at Texas Children's hospital as well as their families. Extra gifts will be used in warrior packs or given at different times of the year. If you would like to send gift cards, please address them to: LWL PO box 842263 Houston, TX 77284 Thank you!

Published on 2015-11-03 15:53:35 GMT

This sounds so very promising! Let's all pray that there can be success in this research! http://www.ctvnews.ca/mobile/health/canadian-researchers-break-blood-brain-barrier-with-new-ultrasound-treatment-1.2648878

Published on 2015-11-10 14:00:50 GMT

We are still awaiting the new shipment of warrior packs! We have all of your applications, all of the fun fillings, and we will ship the moment they arrive! Strong and brave!!

Published on 2015-10-30 13:53:53 GMT

Thank you to Karen Spencer, who did a private fundraiser for LWL and raised over $500 for our Christmas programs!

Published on 2015-11-19 01:49:19 GMT

We will be delivering toys and gift cards to Texas Children's oncology clinic and infusion rooms on December 11th! If you would like to donate an unwrapped gift or a gift card, I can privately message you my address or you may mail to LWL PO box 842263 Houston, TX 77284

Published on 2015-11-10 18:05:24 GMT

Generated summary (experimental)

The Linked with Liam Foundation was founded by Christian and Carli Webb in January 2014 to honor the life of their son, Liam Webb, who passed away after a courageous battle with brain cancer on November 23, 2013.
The Linked with Liam Foundation is dedicated to raising money for these families.
It is our MISSION to improve the lives of children with cancer and their families with much needed support in the battle against their life threatening illness.
We help with expenses that these families encounter when they are forced to put their lives on hold to be with their children.
We know that family support can be just as important to recovery as medicine.
When cancer strikes, especially when a child is affected, it can easily send life into a tailspin.
Our goal is to reduce the impact not only on the warrior, but to the entire family.
It has become my life’s work and my calling to support these families that are going through the same nightmare that we faced.
Cancer may have tried to steal our family’s joy, but it did not succeed.
Join us as we try to bring hope and joy to the every day warriors that fight this uphill battle.”
Sincerely
Carli Webb
Founder
The Linked With Liam Foundation
About 10,450 children in the United States under the age of 15 will be diagnosed with cancer in 2014.
Childhood cancer rates have been rising slightly for the past few decades.
Cancer is the second leading cause of death in children (after accidents).
About 1,350 children younger than 15 years old are expected to die from cancer in 2014.
Liam Webb was a normal, happy 3 year old boy.
After a few doctors visits and an emergency room visit for a neck tilt, Liam was diagnosed with a brain tumor in April of 2013.
It was not the cancer that kill e d him, but the treatments that lowered his immune system so that it was unable to fight infection.
Our goal is to fund the research needed to provide our children with less toxic treatments so that they can survive their cancer and live a healthy lifestyle.