Vasculitis Foundation

at 7 NW 72nd St, Kansas City , 64118-1860 United States

1. Social Services
2. Non-profit organization

Awareness. Support. Research. http://www.vasculitisfoundation.org/

Description

The Vasculitis Foundation (www.vasculitisfoundation.org) advocates for early diagnosis, leading edge treatment, research, and ultimately a cure for all types of vasculitis. The foundation also supports and empowers patients through education and awareness. The Vasculitis Foundation is a registered 501(c)(3) non-profit organization. To donate, please visit: https://www.vasculitisfoundation.org/donate/ We need your help fighting vasculitis, a group of rare, orphan diseases that deserves your attention. A vasculitis diagnosis irreversibly changes the lives of the adults and children who have it. Some patients lose their lives to it before a diagnosis is made. There is no known cause of vasculitis...no known cure. Patients need your support because their lives are irreversibly and dramatically changed by the disease. Vasculitis wreaks havoc on lives and can cause organ loss, disability, and death. A 2010 survey of vasculitis patients and caregivers, found that 28 percent of patients are on disability due to vasculitis and 26 percent needed to change their work capacity to accommodate their illness. Additionally, 25 percent of family members surveyed reported the death of a loved one due to vasculitis. Vasculitis effects people of all ages, from children to adults. Autoimmune in the nature, a vasculitis patient’s own immune system causes inflammation that damages arteries, veins, or capillaries. This inflammation may narrow blood vessels, cause aneurisms, as well as block vital blood flow to organs and limbs. This blockage can cause serious organ damage and without proper treatment may even result in death. Vasculitis is difficult to diagnose and is often misdiagnosed due to its rarity and scant research, delaying treatment and proper disease management. Oftentimes, it is the resulting damage that finally leads doctors to a proper diagnosis.

General Info

Vasculitis is a family of 15 diseases that can affect people of all ages, from children to older adults. Some types of vasculitis are more prevalent at certain age ranges. Though some forms of vasculitis improve on their own, most require treatment. The length of time varies, with some people using medications for extended periods of time. The 15 different types of vasculitis are classified according to the size and location of the blood vessels that are affected. The 15 types of vasculitis are: Behcet's Disease Buerger’s Disease Central Nervous System Churg Strauss Syndrome Cryoglobulinemia Giant Cell Arteritis (Temporal Arteritis) Henoch-Schönlein Purpura Hypersensitivity Vasculitis Kawasaki Disease Microscopic Polyangiitis Polyarteritis Nodosa Polymyalgia rheumatica Rheumatoid Vasculitis Takayasu’s Arteritis Wegener's Granulomatosis Membership information can be found at: https://www.vasculitisfoundation.org/membership/

Company Rating

4073 FB users likes Vasculitis Foundation, set it to 23 position in Likes Rating for Kansas City, Missouri in Non-profit organization category

Summary

Vasculitis Foundation is Kansas City based place and this enity listed in Social Services category. Located at 7 NW 72nd St MO 64118-1860. Contact phone number of Vasculitis Foundation: (800) 277-9474 or (816) 436-8211 phone/fax