DIPG Support and Awareness

1. Community

A place for DIPG families, friends & supporters to come together. Support & awareness for DIPG. DAILY updates & stories on DIPG & children & adults with DIPG.

Description

This page is for anyone interested in spreading awareness for DIPG and looking to give or receive support for DIPG! Though DIPG is most common in children, babies, teens, AND adults get DIPG too, all are welcome here! DIPG stands for Diffuse Intrinsic Pontine Glioma. This page will be updated DAILY and is an ACTIVE page that will not become dormant. We are one of those most active and visited DIPG pages on Facebook. The page was founded by Brittany Martin and is co-run by fellow advocate Melissa Allen Lambert What is DIPG? Diffuse Intrinsic Pontine Glioma is an inoperable and incurable cancerous brain tumor located in the middle of the brain stem. The survival rate is considered less than 1%. DIPG is a pediatric cancer but adults can get it too. Of those affected, statistically they say 90% will pass within 18 months. We know this is scary to read. If your child or loved one was just diagnosed with DIPG, please hold on to HOPE. There ARE promising treatments. There ARE children and adults who have lived 10+ years with CONFIRMED DIPG. There ARE children who have had their DIPG tumors go away. DO NOT GIVE UP. We know you have spent hours Googling DIPG and having your heart break over and over with each page that comes up. You will find some hard stories on our page, but we will put a trigger warning at the top so you can skip those post. But you will also find stories of HOPE, stories of miracles and resilient fighters, kids defying the odds, new treatments that are extending life and giving quality to it, you will find hope. This page will be used to educate people about DIPG, bring attention to DIPG, share links related to DIPG, and also to share the stories and updates of current DIPG fighters and DIPG fighters who have gained their angel wings. DIPG gets an embarrassingly small amount of national funding. ALL childhood cancers combined gets less than 4% of the national funding. Divided up, DIPG gets about $500 in research per child. We need to make the world aware of DIPG. Awareness brings in funding from compassionate people, and funding brings research. Research brings treatments. If you would like your child's information shared please send us a message. Great information to share is your child's Facebook support page if they have one, their photo and age and back-story, a donation link if you have a donation page, and a PO box address or mailing address to send cards and gifts to if you are interested in that. If you have specific request they can be included as well. We love our DIPG fighter siblings too!!! Please share their names and ages as well so they too can receive mail. If a parent or loved one comes across anything on this page they DO NOT want shared or do not approve of, please message the page ASAP so it can be edited or taken down entirely. This page is for love and support and awareness, BE KIND. Also, if we do not have information on something we will direct you to the correct website, page, or group that does. We are connected to hundreds of DIPG families and advocates all over the world and have links to some great information and groups, just ask away! Feel free to share anything from this page. The more people aware of DIPG and the children it affects, the better. More starter info for those new to the page - https://www.facebook.com/dipgkids/posts/432032637162741 I (Brittany) started this page because I have a passion to help people and it’s simply my calling to help children with DIPG. I do NOT have a child with DIPG, I am just an advocate inspired by the loss of my dad to cancer in 2013 and the loss of a local warrior to brain cancer in my little town. This page is dedicated to DIPG angel Katherine King. Katherine the Brave. Katherine the Legend. Donate through PayPal to fightdipg@outlook.com or click here https://www.paypal.me/fightingdipg #FightDipg #HoldOnToHope www.facebook.com/dipgs

Company Rating

58253 FB users likes DIPG Support and Awareness, set it to 1 position in Likes Rating for St. Louis in Community category

Summary

DIPG Support and Awareness is St. Louis based place and this enity listed in Community category.